Genetics/genomics/stem cells

Blog & Updates

Sep 2023

Foundation Announces 2023 Bridging Bioethics Research & Policymaking Grants

The Foundation is pleased to announce the latest awards under its Bridging Bioethics Research & Policymaking initiative: two projects that seek to bridge the divide between bioethics research results and policymaking.
Oct 2022

Making a Difference Grantees: ASBH 2022 Annual Conference Presentations

Some recent Making a Difference grantees will present their Foundation-funded work at this year’s American Society for Bioethics and Humanities Annual Conference. A schedule of their presentations...

Scholars

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Kayte Spector-Bagdady, JD, MBe

Class of 2027 University of Michigan Medical School
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Natalie Ram, JD

Class of 2021 University of Maryland Carey School of Law
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Jessica L. Roberts, JD

Class of 2018 Emory University School of Law
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Debra JH Mathews, MA, PhD

Class of 2014 Johns Hopkins University
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Charmaine DM Royal, PhD

Class of 2012 Duke University
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Steven Joffe, MD, MPH

Class of 2012 University of Pennsylvania Perelman School of Medicine
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David Winickoff, JD, MA

Class of 2010 Organisation for Economic Cooperation and Development
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Jodi Lauren Halpern, MD, PhD

Class of 2008 University of California, Berkeley
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Leslie E. Wolf, JD, MPH

Class of 2006 Georgia State University College of Law
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Anna C. Mastroianni, JD, MPH

Class of 2005 Johns Hopkins Berman Institute of Bioethics

Grants

Ethical Framework for n-of-1 Clinical Trials of Genome Editor Therapeutics for Personalized, Single-Dose Therapies
Debra Mathews, PhD Johns Hopkins University
Grant Type
Making a Difference
Grant Cycle
spring 2026
Implementation of ethics guidelines by stem cell research oversight committees
Kate MacDuffie, PhD Seattle Children's Research Institute
Grant Type
Making a Difference
Grant Cycle
spring 2026
Prenatal Diagnosis in the Post-Roe Era (PD-PRE)
Asha Talati, MD University of North Carolina, Chapel Hill
Grant Type
Making a Difference
Grant Cycle
fall 2023
Exploring Decision-Making about Participation in an Industry-Sponsored in vivo Gene Therapy Clinical Trial for Fabry Disease
Alison Bateman-House, PhD New York University
Grant Type
Making a Difference
Grant Cycle
spring 2022
Understanding perspectives on genomic research in an ethnically and racially diverse cohort of parents
Ingrid Holm, MD, MPH Boston Children’s Hospital
Grant Type
Making a Difference
Grant Cycle
spring 2021
A Collaborative Ethical Approach to Advancing the Science of Synthetic Living Models of Human Biology
Insoo Hyun, PhD Case Western Reserve University
Grant Type
Making a Difference
Grant Cycle
fall 2018
Drawing the line: Assessing and analyzing the US Rule on embryo research from ethical, political, and scientific perspectives
Kirstin Matthews, PhD Rice University
Grant Type
Making a Difference
Grant Cycle
spring 2017
A Mutually Responsive Approach to Developing Technologies That Alter Shared Ecosystems
Kevin Esvelt, PhD Massachusetts Institute of Technology
Grant Type
Making a Difference
Grant Cycle
fall 2016
Ethical, Legal, and Practical Solutions for Research Combining Electronic Medical Records and Genomic Sequence Data
Henry T. Greely, JD Stanford University
Grant Type
Making a Difference
Grant Cycle
fall 2013