Steven Joffe’s work focuses on the ethics of knowledge creation in medicine and life science, and on the ethical dimensions of genomic technologies in biomedical research and patient care. Dr. Joffe currently serves as Interim Chair of the Department of Medical Ethics and Health Policy, as Chief of the Division of Medical Ethics, and as Director of the National Human Genome Research Institute (NHGRI) funded Penn Postdoctoral Program in the Ethical, Legal, and Social Implications of Genetics and Genomics. He is a member of the FDA’s Pediatric Ethics Subcommittee, the NHGRI’s Genomics and Society Working Group, and the Board of Scientific Counselors of the NIH Clinical Center. In addition, he is an elected Fellow of The Hastings Center.
In ongoing work funded by the Patient-Centered Outcomes Research Institute, Dr. Joffe and his colleagues are analyzing interviews with senior leaders (including patient/family leaders) of learning healthcare systems to understand how they approach governance of their learning missions and how they engage patients and families in that governance. In a randomized trial funded by the National Cancer Institute, they are comparing strategies for detecting inherited risk among young adults with cancer, as well as conducting interviews with patients and their relatives to understand the diffusion of information about genetic risk as well as how decisions about genetic testing are made within families.
For more information, visit: https://medicalethicshealthpolicy.med.upenn.edu/faculty-all/steven-joffe