Steven Joffe’s work focuses on the ethics of knowledge creation in medicine and life science, and on the ethical dimensions of genomic technologies in biomedical research and patient care. Dr. Joffe is currently the Art and Ilene Penn Professor of Medical Ethics and Health Policy and Professor of Pediatrics at the University of Pennsylvania Perelman School of Medicine, where he serves as Chair of the Department of Medical Ethics and Health Policy, as Chief of the Division of Medical Ethics, and as Director of the National Human Genome Research Institute (NHGRI) funded Penn Postdoctoral Program in the Ethical, Legal, and Social Implications of Genetics and Genomics. He is an elected Fellow of The Hastings Center and an elected member of the National Academy of Medicine.
In recently completed work funded by the Patient-Centered Outcomes Research Institute, Dr. Joffe and his colleagues conducted and analyzed interviews with senior leaders (including patient/family leaders) of learning healthcare systems to understand how they approach governance of their learning missions and how they engage patients and families in that governance. In a randomized trial funded by the National Cancer Institute, they are comparing strategies for detecting inherited risk among young adults with cancer, as well as conducting interviews with patients and their relatives to understand how information about genetic risk diffuses and how decisions about genetic testing are made within families.
For more information, visit: https://medicalethicshealthpolicy.med.upenn.edu/faculty-all/steven-joffe