Genetics/genomics/stem cells

Blog & Updates

Sep 2023

Foundation Announces 2023 Bridging Bioethics Research & Policymaking Grants

The Foundation is pleased to announce the latest awards under its Bridging Bioethics Research & Policymaking initiative: two projects that seek to bridge the divide between bioethics research results and policymaking.

Oct 2022

Making a Difference Grantees: ASBH 2022 Annual Conference Presentations

Some recent Making a Difference grantees will present their Foundation-funded work at this year’s American Society for Bioethics and Humanities Annual Conference. A schedule of their...

Scholars

Kayte Spector-Bagdady, JD, MBe

Class of 2027 University of Michigan Medical School

Natalie Ram, JD

Class of 2021 University of Maryland Carey School of Law

Jessica L. Roberts, JD

Class of 2018 Emory University, School of Law

Debra JH Mathews, MA, PhD

Class of 2014 Johns Hopkins University

Charmaine DM Royal, PhD

Class of 2012 Duke University

Steven Joffe, MD, MPH

Class of 2012 University of Pennsylvania Perelman School of Medicine

David Winickoff, JD, MA

Class of 2010 Organisation for Economic Cooperation and Development

Jodi Lauren Halpern, MD, PhD

Class of 2008 University of California, Berkeley

Leslie E. Wolf, JD, MPH

Class of 2006 Georgia State University College of Law

Anna C. Mastroianni, JD, MPH

Class of 2005 Johns Hopkins Berman Institute of Bioethics

Grants

Leading Responsible Change in Genomic Research: Stratified Consent as a Model for Balancing Privacy and Utility in the Public Release of Human Genomic Sequencing Data

Amy Lynn McGuire, JD, PhD Baylor College of Medicine

Grant Type: Faculty Scholars Program
Grant Cycle: 2005 - 2006

Policy Gaps and Conflicts in the Use of Stem Cells, Embryos and Related Technologies

Anna C. Mastroianni, JD, MPH Johns Hopkins Berman Institute of Bioethics

Grant Type: Faculty Scholars Program
Grant Cycle: 2001 -2002

Bioethics and Property Relations in University Life Sciences Research

David Winickoff, JD, MA Organisation for Economic Cooperation and Development

Grant Type: Faculty Scholars Program
Grant Cycle: 2006 - 2007

Do We Need Research Advance Planning and, If We Do, How Can We Do It?

Jason Karlawish, MD University of Pennsylvania

Grant Type: Faculty Scholars Program
Grant Cycle: 2001 - 2002

Genetic Property & Personhood: The Role of Ownership in Genetic Research

Jessica L. Roberts, JD Emory University, School of Law

Grant Type: Faculty Scholars Program
Grant Cycle: 2014-2015

Forensic Biobanking: Investigating Law Enforcement Use of Genetic Biobanks

Natalie Ram, JD University of Maryland Carey School of Law

Grant Type: Faculty Scholars Program
Grant Cycle: 2017 - 2018

Prenatal Diagnosis in the Post-Roe Era (PD-PRE)

Asha Talati, MD University of North Carolina, Chapel Hill

Grant Type: Making a Difference
Grant Cycle: fall 2023

Exploring Decision-Making about Participation in an Industry-Sponsored in vivo Gene Therapy Clinical Trial for Fabry Disease

Alison Bateman-House, PhD New York University

Grant Type: Making a Difference
Grant Cycle: spring 2022

Understanding perspectives on genomic research in an ethnically and racially diverse cohort of parents

Ingrid Holm, MD, MPH Boston Children’s Hospital

Grant Type: Making a Difference
Grant Cycle: spring 2021

Ethical, Legal, and Practical Solutions for Research Combining Electronic Medical Records and Genomic Sequence Data

Henry T. Greely, JD Stanford University

Grant Type: Making a Difference
Grant Cycle: fall 2013

A Collaborative Ethical Approach to Advancing the Science of Synthetic Living Models of Human Biology

Insoo Hyun, PhD Case Western Reserve University

Grant Type: Making a Difference
Grant Cycle: fall 2018

A Mutually Responsive Approach to Developing Technologies That Alter Shared Ecosystems

Kevin Esvelt, PhD Massachusetts Institute of Technology

Grant Type: Making a Difference
Grant Cycle: fall 2016

Drawing the line: Assessing and analyzing the US Rule on embryo research from ethical, political, and scientific perspectives

Kirstin Matthews, PhD Rice University

Grant Type: Making a Difference
Grant Cycle: spring 2017