Our Grants

Policies to improve assessment of inherited cancer risk

Robert Cook-Deegan, MD
Arizona State University
Grant Type Bridging Bioethics Research & Policymaking
Grant Cycle 2022
Duration 12 months
Amount $50,000

Some people die of cancer because they don’t learn of their inherited risk until it is too late.  Many of the several dozen genes associated with high cancer risk were identified three decades ago.  But interpretation of risk is still hampered by incomplete sharing and linking of data.  The Sulston Project has studied policies that might improve data flow and interpretation.  This Greenwall project will build on three years of work by partnering with Burness Communications to refine policy options, craft a communication strategy, identify key policy nodes, organize briefings, and augment web presence and use of digital tools.