Families facing the birth of an extremely premature infant must make difficult life or death choices. These decisions affect both parents, but the health care system tends to view the pregnant person as the decision-maker, neglecting partner input. There is also minimal ethical or legal guidance to help providers meet the decisional needs of families with non-traditional structures. This research will inform models of shared decision-making to engage the needs of both parents, including diverse family structures, and will provide guidance to providers on how to handle parental disagreement.
Periviable Decision-Making Dynamics: Who should decide and what happens when parental parties disagree?