Our Grants

Guiding Principles for Human Data Sharing and Use: Balancing Public and Scientific Values

Debra Mathews, PhD
Johns Hopkins University
Grant Type Making a Difference
Grant Cycle sping 2024
Duration 12 months
Amount $155,736

This project aims to bring together human subject research professionals and those involved in responsible data management from leading research universities with bioethics scholars, Indigenous scholars, and community members of IRBs to develop a set of principles and an implementation framework to justify and guide institutions in responding to data sharing requirements in a way that respects public values and interests.