Medical crowdfunding uses social networks to raise funds for health-related needs. This rapidly growing practice helps address gaps in insurance coverage and inadequate savings. However, bioethicists worry that it may unfairly distribute these benefits, shift attention from the systemic causes of inadequate access to health resources, and undermine privacy. Little is known about medical crowdfunding by US residents. The aim of this project is to gather and analyze data to help assess these and other ethical concerns. We will compile a summary document of what is known about medical crowdfunding by US residents, collect and analyze data from medical crowdfunding campaigns, and hold consultative meetings with medical crowdfunding organizations with the aim of establishing ethical best practices in this industry. This will be the first project to gather and analyze data on medical crowdfunding through a bioethics lens, a significant need given the increased scale and visibility of this practice.
Developing best practices for medical crowdfunding
Simon Fraser University
Anika Vassell et al., What was lost, missing, sought and hoped for: Qualitatively exploring medical crowdfunding campaign narratives for Lyme disease, Health, Mar 2020.Read more
Sarah J. Pol et al., "Tremendous financial burden": Crowdfunding for organ transplantation costs in Canada, PloS One, Dec 2019.Read more
Jeremy Snyder and Leigh Turner, Crowdfunding for stem cell-based interventions to treat neurologic diseases and injuries, Neurology, Aug 2019.Read more