The 21st Century Cures Act mandates that hospitals provide patients with access to electronic health information (EHI), including adolescents. Dr. Sisk and his team will seek to (1) identify risks, benefits, motivations, and barriers to EHI access by performing semistructured interviews with 40 adolescent/parent dyads; (2) discern implementation practices for adolescent EHI access at US pediatric hospitals; (3) facilitate a stakeholder Delphi panel to generate recommendations for EHI implementation practices. This project aims to generate empirical knowledge of ethical and practical challenges to adolescent EHI access.
Our Grants
Sharing Electronic Health Information with Adolescents and Parents: Evaluating the Ethical and Practical Challenges
Bryan Sisk, MD
Washington University
Washington University
Grant Type
Making a Difference
Grant Cycle
fall 2021
Duration
24 months
Amount
$246,444
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Bryan A. Sisk et al., Parental Access to Adolescent Online Healthcare Portals: Benefits, Problems, and Barriers, Applied Clinical Informatics, May 2025
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Bryan A. Sisk et al., Acceptability of Adolescent Portal Access Policies to Parents and Adolescents: A Delphi Study, Journal of Adolescent Health, Mar 2025
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Bryan Sisk et al., Guiding Principles for Adolescent Web-Based Portal Access Policies: Interviews With Informatics Administrators, JMIR Pediatrics and Parenting, Mar 2024
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Bryan A. Sisk et al., Engaging Adolescents in Using Online Patient Portals, JAMA Network, Aug 2023
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Bryan Sisk, The Harms and Benefits of Billing for Patient Portal Messages, Pediatrics, Aug 2023
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Bryan A. Sisk et al., Challenges to Developing and Implementing Policies for Adolescent Online Portal Access, Pediatrics, May 2023
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Grant Focus Areas
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