This project aims to bring together human subject research professionals and those involved in responsible data management from leading research universities with bioethics scholars, Indigenous scholars, and community members of IRBs to develop a set of principles and an implementation framework to justify and guide institutions in responding to data sharing requirements in a way that respects public values and interests.
Learn more and read the consensus recommendations on the project’s website: https://bioethics.jhu.edu/research-and-outreach/projects/guiding-principles-for-human-data-sharing-and-use-balancing-public-and-scientific-values/